Personal care for the whole family
If a child you love suffers from a serious liver disease or small bowel disease and may require a transplant, finding the highest quality care is your top priority. The Transplant Center for Children at MedStar Health, is Washington, D.C.,’s largest program and the nation’s third largest program. We offer comprehensive and unique care that your child needs.
We also understand how difficult it can be for families when a child is critically sick. All patients at the Transplant Center benefit from the unique MedStar Health spirit of cura personalis. This is our mission to care for the whole person – including families.
Comfortable and calming facility
To help kids relax while they are away from home, our facility is decorated in a beach and sandcastles theme, with a 100-gallon fish tank and undersea murals on the walls. Kids have access to games, books, and activities—even video games in their rooms.
Special accommodations for parents
All patient rooms have couches that fold into beds and ample closet space so parents can live in with their children. We also provide cooking and laundry facilities.
Caring multidisciplinary team
Transplant nurses, nutritionists, social workers, and child life specialists work with each child to ease anxiety and offer specialized support.
Read about COVID-19 Resources for Children, Teens and Families (PDF)
Evaluation for pediatric transplant
The Transplant Center for Children at MedStar Health is committed to providing complete personal care. We thoroughly evaluate your child before any liver or small bowel transplant surgery.
Families can expect an evaluation to include:
Meeting with a nurse: A nurse who understands liver or small bowel diseases will meet with your family and explain everything about the process and procedure.
Social worker assessment: A social worker will assess your family’s personal situation and ability to cope with the strains of a transplant. We will provide whatever assistance your family needs to support you through the process.
Transplant surgeon evaluation: A transplant surgeon will examine your child to determine the technical details of the transplant.
The Transplant Center for Children at MedStar Health is a unique facility—our 15-bed center allows parents to live with their children while they are waiting for a transplant or being treated for their liver or small bowel conditions.
Our team of surgeons is world-renowned for its innovative and compassionate expertise. They have performed more than 1,000 liver transplants and 300 small bowel transplants.
Our team performs about 40 transplants each year, five times as many as at the average pediatric transplant program.
The team includes some of the world’s leading experts on pediatric transplants and pioneers new, complex techniques that other programs around the world seek to model.
We also collaborate with a wide range of specialists both at MedStar Health and at Children’s National Medical Center.
A variety of liver conditions can require surgery or a liver transplant in young children.
Pediatric liver diseases we treat
Babies and children generally contract hepatitis through contact with contaminated diapers (hepatitis A) or from an infected mother during birth and delivery (hepatitis B). Metabolic diseases can also lead to hepatitis infections.
Bile helps the body digest food and nutrients. In some babies, the tubes that deliver bile from the liver to the gallbladder do not develop properly. Defective tubes can cause blockages of built-up bile in the tubes, which can lead to complications like cirrhosis (severe liver scarring).
Hepatoblastoma is a type of cancerous liver tumor that affects babies and children under age three. It can cause cancer to spread to other organs including the lungs, stomach, or bone marrow.
Bile ducts deliver bile from the liver to the gallbladder. Some babies are born with bile ducts that never fully developed. As a result, bile can get stuck in the tubes and form choledochal cysts (lumps), which can cause jaundice or become infected and need to be removed with surgery.
Metabolic Liver Diseases
A wide variety of metabolic and genetic diseases that can affect and damage the liver, including:
Glycogen storage disease type I
Crigler-Najjar Syndrome type I
Pediatric small bowel transplants
Children who suffer from small bowel disease can lose the function of the small intestine. Surgery can repair it, but may also remove part of the organ.
Removing more than half of the small intestine limits its ability to function. It can no longer absorb enough nutrients, food, and liquids to sustain a healthy life. Children who do not respond to other treatment options, such as pediatric surgery, may need a small bowel transplant.
The pediatric surgeons at the Transplant Center for Children at MedStar Health have more experience than almost any other clinic nationwide in pediatric transplants. We perform more than 40 small bowel transplant surgeries each year – more than five times the national average. Our survival rates are also much higher than average. As a result, we are one of only seven centers in the country approved by Medicare and Medicaid Services to perform small bowel transplants.
Your team of surgeons will evaluate your child’s condition and recommend one of the following small bowel transplant treatment options.
Small bowel transplant treatment options
- Isolated intestinal transplant: Isolated intestinal transplant is a transplantation of the small bowel plus or minus the large bowel.
- Modified multivisceral transplant: Modified multivisceral transplant is a transplantation of the stomach, pancreas plus or minus the large bowel.
- Multivisceral transplant: Multivisceral transplant is a transplantation of the liver, stomach, pancreas, small bowel plus or minus the large power.
- Liver intestinal transplant: Liver intestinal transplant is a transplantation of the liver, pancreas, small bowel plus or minus the large bowel with preservation of the native stomach, as well as the native pancreas.
When a child is too sick to eat normally, intravenous feeding or TPN can deliver the nutrition he or she needs. But over time, these methods can cause serious liver problems, damage other organs, and lead to organ failure. When this happens, a child may need up to six or seven organs replaced with a transplant. These organs can include:
Any single organ transplant is a complex procedure, especially in a small child. That is why you need the most experienced team of pediatric surgeons available to care for a child in need of a multi-organ transplant. The pediatric surgeons at the Transplant Center for Children at MedStar Health are world-renowned for unparalleled expertise and quality, personal care.
As one of the top three centers for pediatric transplants in the nation, we have performed more than 1,000 liver transplants and 300 small bowel transplants. Our doctors are pioneering new, complex techniques that other centers seek to model.
One of our top priorities at the Transplant Center for Children at MedStar Health Transplant Institute is to help your child avoid the need for an organ transplant. That is why we offer a wide range of non-transplant treatment options, including pediatric surgery, whenever we can.
Non-transplant treatments are most effective when we offer them to patients as early on as possible – often in the first month or two of life.
Our recommendations for non-transplant treatment options depend on your child’s particular condition. We use the most cutting edge and advanced methods.
Common non-transplant options
Our surgeons have extensive expertise and experience treating a wide variety of conditions. Conditions that can benefit from surgery include:
Biliary atresia: The Kasai procedure is a special surgery that connects the liver to the small intestine. This works around the underdeveloped bile ducts. Bile can then move through the body more effectively.
Liver cancer: Surgery helps remove as much of the liver tumor as possible.
Choledochal cysts: Surgeons remove the bile duct containing the cyst, which often restores the health of the intestine.
Intestinal atresia: Surgeons can repair the part of the intestine that is underdeveloped.
Necrotizing enterocolitis: If the condition tears a hole in the intestinal wall, surgeons can repair the hole in one or two surgical procedures.
Malrotation and volvulus: Surgeons can examine the health of the intestines, twist and place them in the right position. Surgeons can also remove any damaged section of the intestines.
Short bowel syndrome: In certain situations, surgeons may be able to perform lengthening procedures that increase the length of the native intestine, which can improve intestinal motility and increase absorption. This is a known as a STEP procedure, or serial transverse enteroplasty (STEP) procedure.
Before and after any surgical procedure, we give patients antibiotics to ward off infection. We also use medication to treat certain metabolic disorders that have not resulted in severe liver damage.
Often, infants with intestinal conditions need extra nutrients, calories, and vitamins. Our nutritionists will help design the most effective nutritional treatment plan. If children are too sick to take in food orally, we use special feeding techniques, including total parenteral nutrition (TPN) to make sure they get exactly what they need.
Chemotherapy drugs can help stop the growth of cancerous liver tumors, or help shrink an existing tumor.
When Dvir Sabag was 12 years old he was rushed to MedStar Health with autoimmune hepatitis, a disease caused by an overactive immune system. Through medical treatment, transplant specialists helped him avoid needing a new liver.
Infants who cannot absorb nutrients through their gastrointestinal tracts require a different way to get nutrition. Total parenteral nutrition (TPN) gives infants the nutrients they need by delivering fluids directly into their veins. These fluids contain a balanced mixture of nutrients including: electrolytes, calories, amino acids, vitamins, minerals, and fats.
Extended use of TPN can cause further liver problems, bowel problems, or damage to other organs. It is important to discuss these risks with your surgeon.
If your baby needs TPN, it’s natural to feel scared and overwhelmed. The doctors and nurses at the Transplant Center for Children at MedStar Health understand your concerns. You can rest assured that you and your baby are in good hands. Our team is one of the most experienced in the country, and includes the world’s experts in hepatology. We pioneer the most innovative treatments, and other centers visit us to learn how to “do it the MedStar Health way.”
We will closely monitor your baby and offer the most effective treatment options. Our nurses and social workers also support families with information, help, and compassion throughout treatment.
Our facilities also offer large, private rooms with couches that pull out into beds. You can plan to live in the hospital with your baby for as long as necessary.
We share your goal: to give your baby the best chance for the most complete recovery.